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Factors Associated with Participation Patterns of Young Brazilian Children with Myelomeningocele
Lorena Costa Ferreira1, Egmar Longo2, Alexandre Varella Giannetti3
1Graduate Program in Rehabilitation Sciences, School of Physical Education, Physical Therapy and Occupational Therapy, Universidade Federal de Minas Gerais, Minas Gerais, Brazil.
Insights
Young Brazilian children with myelomeningocele (MMC) participate infrequently in home, daycare, and community settings. Factors like age and mobility influence their participation levels and desire for change.
Area of Science:
- Pediatrics
- Developmental Disabilities
- Rehabilitation Science
Background:
- Myelomeningocele (MMC) significantly impacts a child's development and participation.
- Understanding participation patterns is crucial for early intervention in young children with MMC.
Purpose of the Study:
- To describe participation patterns of young Brazilian children with MMC in home, daycare/preschool, and community settings.
- To identify factors associated with their participation levels and caregiver desires for change.
Main Methods:
- Parents/caregivers of 70 children with MMC (mean age 26.7 months) completed the Young Children's Participation and Environment Measure (YC-PEM).
- Simple and stepwise multiple linear regression models analyzed factors associated with participation.
Main Results:
- Children had limited participation: home (few times/week), community (monthly), daycare/preschool (few times/4 months).
- Age correlated with daycare/preschool participation frequency and number of activities.
- Mobility performance linked to involvement level and desire for community participation change.
Conclusions:
- Participation levels for young children with MMC in Brazil are low across various settings.
- Identifying influencing factors like age, environment, and mobility is key for targeted interventions.
- Interventions should aim to enhance participation opportunities and address caregiver desires for change.
Aims:
To describe participation patterns and identify factors associated with participation of young Brazilian children with myelomeningocele (MMC) in their home, daycare/preschool, and community settings.
Methods:
The participants were parents/caregivers of 70 children with MMC, averaging 26.7 (±17.3) months in age. Participation was measured by the Young Children's Participation and Environment Measure (YC-PEM) completed by interview. Simple and stepwise multiple linear egression models were used to examine factors associated with participation.
Results:
On average children participated in home activities a few times a week, community activities once a month to a few times in the last month, and daycare or preschool activities once to a few times in the past four months. Age was associated with participation frequency (R2 = 0.32; p < .0001) and number of activities (R2 = 0.27; p < .02) in daycare/preschool and in the number of activities in the community (R2 = 0.30; p < .0001). Number of environmental facilitators was associated with the desire for change in participation in daycare/preschool (R2 = 0.21; p < .04). Mobility performance was associated with children's level of involvement (R2 = 0.10; p = .006) and caregivers' desire for change in community participation (R2 = 0.11; p = .006).
Conclusion:
Knowledge of participation and factors that influence participation can help in designing interventions to improve participation opportunities for young children with MMC.
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