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Expert Consensus on Developing Information and Communication Technology-Based Patient Education Guidelines for

Junghee Yoon1,2, Soo-Kyung Cho3,4, Se Rim Choi3,4

  • 1Department of Clinical Research Design and Evaluation, SAIHST, Sungkyunkwan University, Seoul, Korea.

Journal of Korean Medical Science
|January 7, 2025
PubMed
Summary

Experts identified key priorities for developing information and communication technology (ICT)-based patient education guidelines for rheumatic diseases (RDs) in South Korea. Focus areas include digital health literacy, user experience, and mobile app design for better patient engagement.

Keywords:
Information and Communication Technology (ICT)Patient EducationRheumatic Diseases

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Area of Science:

  • Rheumatology
  • Digital Health
  • Health Informatics

Background:

  • Developing effective patient education is crucial for managing rheumatic diseases (RDs).
  • Information and communication technology (ICT) offers potential for tailored patient education.
  • Guidelines are needed to optimize ICT use for RDs in the Republic of Korea.

Purpose of the Study:

  • To establish expert consensus on priorities for ICT-based patient education guidelines for RDs.
  • To identify key domains and items for developing these guidelines.

Main Methods:

  • A modified Delphi study involving 20 experts in rheumatology, patient education, and digital health.
  • Evaluation of 35 items across 7 domains and 18 subdomains using a 4-point Likert scale.
  • Consensus defined by interquartile range, agreement percentage, and content validity ratio.

Main Results:

  • High consensus on priorities including health literacy, digital health literacy, medical terminology, and user interface/experience for mobile apps.
  • Strong agreement on the use of chatbots and video content (e.g., YouTube).
  • AI platforms like ChatGPT showed moderate-to-high agreement; telemedicine lacked sufficient consensus.

Conclusions:

  • Identified priorities form a basis for developing ICT-based patient education guidelines for RDs in South Korea.
  • Future work should integrate digital tools into clinical practice.
  • Enhancing patient engagement and improving clinical outcomes are key goals.