Educational needs of informal caregivers in cardiac rehabilitation: a mixed-methods study

Informal caregivers play a crucial role in supporting individuals with cardiovascular disease (CVD) during cardiac rehabilitation (CR), yet their specific educational needs are often overlooked. Understanding these needs is essential for developing targeted interventions that enhance informal caregiver support and improve patient outcomes in CR. This study aimed to explore the educational needs of informal caregivers supporting individuals with CVD attending CR.

A mixed-methods approach was used to explore the educational needs of informal caregivers. Quantitative data were collected through an online cross-sectional survey completed by 86 informal caregivers. The survey assessed sociodemographic characteristics, quality of life (WHOQOL-BREF), and educational needs. Most respondents had not received formal education or training related to caregiving, although their knowledge of CVD was rated as moderate to high. Many reported difficulties accessing reliable information and resources. Qualitative data were gathered through semi-structured interviews with 16 informal caregivers, and four key themes were determined: Helpful Resources, Empowerment, Lived Experience Network, and Psychological Support. Informal caregivers expressed a desire for practical resources, more direct access to healthcare professionals, and both emotional and peer support. They also highlighted the importance of managing stress and balancing their well-being alongside caregiving responsibilities.

The findings suggest that educational interventions for informal caregivers should be comprehensive and flexible, incorporating practical caregiving strategies as well as social and emotional support. Such programmes could enhance the effectiveness of CR by better equipping informal caregivers to support patient recovery while maintaining their own health.