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Reddit users' perspectives on radiofrequency ablation: A data analysis.

Laura Furtado Pessoa de Mendonca1, Sebastian Encalada1, Johanna Mosquera-Moscoso1

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Summary

Patients seeking chronic pain relief through radiofrequency ablation (RFA) shared varied experiences online. Analysis of Reddit discussions reveals patient concerns about RFA effectiveness, duration, and adverse events, highlighting the need for informed physician-patient dialogue.

Keywords:
Chronic painNeuromodulationRadiofrequency ablationSocial media

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Area of Science:

  • Pain Management
  • Interventional Pain Procedures
  • Digital Health & Patient Experience

Background:

  • Chronic pain patients utilize online platforms like Reddit for anonymous discussions.
  • These forums offer insights into patient perspectives on pain-relief procedures outside clinical settings.
  • Radiofrequency ablation (RFA) is a common pain-relief procedure with varying patient outcomes.

Purpose of the Study:

  • To analyze patient experiences and concerns regarding radiofrequency ablation (RFA) for chronic pain relief.
  • To gain insights from online discussions on RFA effectiveness, side effects, and patient satisfaction.
  • To understand patient expectations and potential barriers to RFA treatment.

Main Methods:

  • Utilized the Python Reddit Application Programming Interface Wrapper to screen user posts.
  • Analyzed 142 Reddit threads and 1676 comments from four relevant forums.
  • Organized data in a spreadsheet for comprehensive analysis of patient-generated content.

Main Results:

  • Most threads (n=137) involved self-identified patients, with more negative (n=32) than positive (n=7) experiences.
  • Pain improvement was reported by 187 comments, while 130 noted no improvement; 11 users recommended RFA, 9 did not.
  • Adverse events (n=36) included worsening pain and procedural discomfort; concerns about RFA's long-term effects and impact on spinal health were also noted.

Conclusions:

  • Online patient discussions provide valuable, albeit sometimes biased, insights into RFA experiences.
  • Physicians can leverage these patient perspectives to enhance discussions about RFA suitability and expectations.
  • Understanding patient concerns from platforms like Reddit can lead to more informed shared decision-making regarding chronic pain management.