The Outcome of Ongoing Adult Endocrine Engagement Following Transition From Paediatric Care

Transition is important for continuity of care for patients with chronic health conditions. The aim of this service evaluation was to determine the effectiveness of a transition clinic at a tertiary hospital with long-term attendance in the adult endocrine service.

Retrospective case notes review of patients seen by paediatric endocrinology at the Royal Hospital for Children, Glasgow, at the time of transition to adult services, between 2012 and 2022. Patients with type 1 diabetes were excluded.

Engagement was measured through clinic attendance and dropout rate. The 'dropped out patients' were those who were seen in the transition clinic with a transition plan but did not attend appointments in the adult service.

Of the 267 individuals offered a transition clinic, data on discharge status were available for 248 (94%). Of these, 52% (n = 129) remained in the same tertiary centre, 29% (n = 61) were transferred to other endocrine centres in the West of Scotland; 17% (n = 42) were discharged to primary care. Overall, 91% (172/190) of young patients remained engaged with the adult service. Male patients had a higher drop out rate compared to females (14% vs. 4%, p < 0.05). Those from more deprived areas also had higher drop out rates compared to those from more affluent areas (17% vs. 3%, p < 0.05).

Our clinic model for transitioning from paediatric to adult endocrine care is effective in introducing and retaining patients to the adult service with only a 9% drop out rate. Factors associated with poor attendance in adult services include deprivation and being male. Additional support may be required for these individuals to improve engagement in adult services.