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Normative CLEFT-Q Data From the General Dutch Population.

Philip A J van der Goes1, Victor L Van Roey1, Saranda Ombashi1

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Summary
This summary is machine-generated.

This study established normative values for the CLEFT-Q in the Dutch population. Findings reveal significant differences in scores based on sex, education, and age, aiding clinical interpretation.

Keywords:
Cleft lipPROMcleft palatedutchnormative values

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Area of Science:

  • Health Sciences
  • Psychometrics
  • Population Health

Background:

  • Patient-Reported Outcome Measures (PROMs) are crucial for assessing outcomes in patients with cleft lip and palate (CL/P).
  • Normative values for the CLEFT-Q in individuals without CL/P were previously unavailable.
  • Establishing these benchmarks is essential for accurate interpretation of CLEFT-Q scores.

Purpose of the Study:

  • To establish normative values for the CLEFT-Q in the general Dutch population aged 16-24 without CL/P.
  • To identify demographic factors influencing CLEFT-Q scores.

Main Methods:

  • An online survey recruited 870 Dutch nationals aged 16-24 without CL/P.
  • Participants completed the CLEFT-Q (excluding specific scales).
  • Data were weighted, and normative values were calculated; Tobit regression analyzed demographic associations.

Main Results:

  • Significant variations in CLEFT-Q scores were observed based on sex (females scored lower), education level (lower education associated with lower scores), and age (younger participants scored lower).
  • All CLEFT-Q scales showed positive correlations, with social and school functioning being most strongly correlated.
  • 160 participants were excluded due to potential craniofacial anomalies.

Conclusions:

  • This study provides the first normative values for the CLEFT-Q in the Dutch general population.
  • Demographic factors like sex, education, and age significantly impact CLEFT-Q scores.
  • These normative values enhance clinical interpretation and decision-making for CLEFT-Q assessments.