Transition to Adult Care in Turner Syndrome: Research Gaps and Strategies for Achieving Success
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View abstract on PubMed
Summary
This summary is machine-generated.Optimizing health care transition for youth with Turner syndrome (TS) requires addressing system and individual barriers. This study outlines research gaps and strategies for improved transition outcomes in TS patients.
Area Of Science
- Pediatric Endocrinology
- Health Services Research
- Transition Medicine
Background
- Health care transition (HCT) is crucial for youth with chronic conditions moving from pediatric to adult care.
- Existing HCT guidelines are not optimized for all populations, including those with Turner syndrome (TS).
- Significant system-level and individual/family barriers impede effective HCT for TS youth.
Purpose Of The Study
- To identify key research gaps in health care transition for Turner syndrome.
- To propose strategies for optimizing HCT outcomes in individuals with TS.
- To emphasize a multi-disciplinary, patient-centered approach to HCT.
Main Methods
- Literature review of existing HCT guidelines and research.
- Analysis of barriers specific to the TS population.
- Synthesis of evidence-based strategies for HCT optimization.
- Outline of roles for various stakeholders in the HCT process.
Main Results
- Identified significant research gaps in TS-specific HCT interventions and outcome measures.
- Highlighted the need for multi-faceted approaches including research, education, advocacy, and evidence-based strategies.
- Emphasized the critical roles of pediatric and adult healthcare teams, patients, caregivers, and institutions.
Conclusions
- Addressing barriers requires targeted research, educational initiatives, policy changes, and evidence-based strategies.
- Optimizing HCT for TS necessitates a collaborative effort involving all stakeholders.
- A patient-centered, multi-disciplinary approach is essential for successful transition outcomes in Turner syndrome.
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