Design and Development of a Web-Based Registry for Outpatient Rehabilitation: A Delphi Multi-Disciplinary, Expert...

Area of Science:

• Rehabilitation Medicine
• Health Informatics
• Data Science

Background:

• Outpatient rehabilitation requires standardized data collection for effective patient management.
• Current data practices lack a unified minimum data set (MDS) across disciplines.
• A web-based registry can centralize and optimize rehabilitation data.

Purpose of the Study:

• To develop a minimum data set (MDS) for outpatient rehabilitation.
• To design a web-based registry for collecting rehabilitation data.
• To enhance assessment, guide care, and support evidence-based management in rehabilitation.

Main Methods:

• Systematic literature review of PubMed, Scopus, Embase, and Web of Science.
• Utilized the Delphi technique for expert consensus on data elements.
• Developed and validated an MDS and designed a web-based registry.

Main Results:

• Established a comprehensive MDS for outpatient rehabilitation.
• Refined 470 initial data elements to 423 through expert consensus.
• The MDS includes basic and specialized information across four disciplines: optometry, audiology, physiotherapy, and speech therapy.

Conclusions:

• The developed MDS and registry integrate multidisciplinary expert perspectives.
• This resource supports clinical decision-making in outpatient rehabilitation.
• Aims to improve the quality and consistency of rehabilitation services.