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Patient Voices: Multimethod Study on the Feasibility of Implementing Electronic Patient-Reported Outcome Measures in
Cinzia Brunelli1, Sara Alfieri2, Emanuela Zito3
1Palliative Care, Pain Therapy and Rehabilitation Unit, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Milano, Italy.
The Patient Voices software shows high usability for collecting electronic patient-reported outcomes (ePROMs) in cancer care. Implementation challenges include organizational issues and patient burden, but the system supports routine clinical management.
Area of Science:
- Oncology
- Health Informatics
- Patient-Reported Outcomes
Background:
- "Patient Voices" software facilitates systematic electronic patient-reported outcome measures (ePROMs) collection in oncology.
- This study evaluated the "Patient Voices" ePROM system in an Italian cancer center.
Purpose of the Study:
- Assess compliance and feasibility of the "Patient Voices" ePROM system.
- Identify patient-related barriers to ePROM implementation in routine oncology care.
Main Methods:
- A multimethod study (quantitative and qualitative) enrolled cancer patients from outpatient and inpatient settings.
- Data collected included ePROM compliance, reasons for non-administration, patient interaction needs, and System Usability Scale (SUS) scores.
- Semistructured interviews were conducted with a subsample of patients.
Main Results:
- High eligibility (96.7%) and completion rates (73.4%) for ePROMs were observed.
- Organizational problems and patient refusal were key barriers; 27.8% of outpatients needed help with tablet use.
- The "Patient Voices" system demonstrated high usability (mean SUS scores: 86.8 outpatients, 83.9 inpatients), with 76.9% compliance in repeated measurements.
- Patients reported positive attitudes but noted time/cognitive effort barriers and skepticism regarding clinician interaction.
Conclusions:
- The "Patient Voices" system offers valuable insights for implementing ePROMs in routine cancer care.
- Findings are applicable to other organizations seeking to systematically collect patient-reported outcomes.
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