Related Experiment Video

Updated: May 31, 2025

Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure
07:56

Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure

Published on: September 19, 2019

9.8K

Social support and family resources influence workload and capacity in parents of children with medical complexity

Patricia R Lawrence1, Melissa Spezia Faulkner1, Regena Spratling1

  • 1Byrdine F. Lewis College of Nursing and Health Professions, Georgia State University, 140 Decatur Street, Urban Life, Atlanta, GA 30303, USA.

Journal of Pediatric Nursing
|January 22, 2025
PubMed

Insights

Caring for children with medical complexity and critical congenital heart disease is demanding. Higher family resources and social support reduce parental workload and increase care capacity.

Area of Science:

  • Pediatric Cardiology
  • Family Medicine
  • Healthcare Management

Background:

  • Limited research exists on factors affecting parents of children with medical complexity (CMC) who also have critical congenital heart disease (CCHD).
  • Understanding these factors is crucial for developing effective support systems for these families.

Purpose of the Study:

  • To examine the relationships among family resources, social support, and their influence on parental workload and care capacity for children with CCHD.
  • To identify key factors that can alleviate the burden on parents caring for CMC with CCHD.

Main Methods:

  • A national sample of 106 parents of CMC with CCHD participated in a non-experimental, cross-sectional study.
  • Data on family resources, social support, workload, and care capacity were collected and analyzed using correlation and multiple regression.

Main Results:

  • Higher family resources were linked to reduced workload and increased care capacity.
  • Greater social support was associated with higher care capacity.
  • Increased parental workload was correlated with decreased care capacity.

Conclusions:

  • Fewer resources, less social support, and lower perceived capacity are associated with increased parental workload for caring for CMC with CCHD.
  • Universal screening for social support and family resources is recommended to aid these families.
Abstract

Keywords:
CongenitalFinancial stressHeart defectsParentsPediatricsSocial support

More Related Videos

Using a Murine Model of Psychosocial Stress in Pregnancy as a Translationally Relevant Paradigm for Psychiatric Disorders in Mothers and Infants06:39

Using a Murine Model of Psychosocial Stress in Pregnancy as a Translationally Relevant Paradigm for Psychiatric Disorders in Mothers and Infants

Published on: June 13, 2021

3.0K
A Modified Trier Social Stress Test for Vulnerable Mexican American Adolescents06:15

A Modified Trier Social Stress Test for Vulnerable Mexican American Adolescents

Published on: July 10, 2017

12.8K

Related Concept Videos

Parental Care00:55

Parental Care

Many animals exhibit parental care behavior, including feeding, grooming, and protecting young offspring. Parental care is universal in mammals and birds, which often have young that are born relatively helpless. Several species of insects and fish, as well as some amphibians, also care for their young.
11.6K
Stress Prevention and Stress Management Techniques V01:28

Stress Prevention and Stress Management Techniques V

A social support system is a structured network of personal relationships that provides assistance to individuals facing various challenges, offering a buffer against psychological and physical stressors. This network may consist of family members, friends, neighbors, colleagues, or other community members who provide resources and companionship. Social support can take many forms, including advice, emotional comfort, practical help, and companionship. Research indicates that these networks can...
26
Dimensions of Health and Illness01:21

Dimensions of Health and Illness

The factors influencing the health-illness continuum can be internal or external and may or may not be under conscious control. They are related to the following eight human dimensions, and each dimension is interrelated to one other.
7.0K
Methods of Documentation VI: Case Management Model01:15

Methods of Documentation VI: Case Management Model

The case management model is a multidisciplinary approach that involves healthcare professionals from diverse disciplines, such as physicians, nurses, therapists, social workers, and pharmacists, working collaboratively to address the various needs of patients. Each healthcare professional brings unique expertise and perspectives, contributing to a more comprehensive understanding of the patient's condition and tailoring treatment plans accordingly.
For example, a patient with a chronic...
559
Factors Affecting Illness01:18

Factors Affecting Illness

When a person's physical, emotional, intellectual, social development or spiritual functioning is compromised, this deviation from a healthy normal state is called illness. Illness creates stress that in turn harms individuals. Irritation, anger, denial, hopelessness, and fear are behavioral and emotional changes an individual experiences in the phases of illness. A variety of factors influence a person's health and well-being.
For instance, risk factors are connected to illness,...
4.2K
Influence of Parents and Peers on Identity01:23

Influence of Parents and Peers on Identity

Adolescence is a pivotal period of identity formation, during which individuals begin to answer questions central to their sense of self, such as "Who am I?" and "Who do I hope to become?" Both parents and peers play critical roles in guiding adolescents through this complex developmental phase.
Parental Influence on Identity Development
Parents serve as primary guides and managers in an adolescent's life, offering support instrumental in decision-making and personal growth....
42