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Published on: November 7, 2015
Targeted Transition Readiness Workshops for Pediatric Brain Tumor Survivors: Feasibility, Acceptability, and
Julie Carrier1, Tziona Lugasi2, Nathalie Labonté2
1Department of Psychology, Université de Montréal, Montréal, QC H3T 1J4, Canada.
This pilot study explored a transition readiness intervention for pediatric brain tumor survivors (PBTS). The program showed promise in improving self-management skills and readiness for adult healthcare settings.
Area of Science:
- Oncology
- Pediatric Healthcare
- Transition Medicine
Background:
- Pediatric brain tumor survivors (PBTS) face long-term health challenges requiring ongoing medical care.
- Transitioning from pediatric to adult healthcare is crucial for managing late effects of cancer treatment.
- Effective transition readiness interventions are needed to support PBTS.
Purpose of the Study:
- To assess the feasibility and acceptability of a targeted transition readiness intervention for PBTS.
- To evaluate the preliminary effects of the intervention on self-management skills and transition readiness.
- To gather insights for optimizing future intervention development.
Main Methods:
- A pilot study involving three hybrid workshops for PBTS and their caregivers.
- Workshops focused on disease-related self-management, social skills, and cognitive functioning.
- Feasibility assessed via recruitment and retention; acceptability via satisfaction surveys; preliminary effects via the Transition Readiness Assessment (TRAQ) questionnaire.
Main Results:
- 12 (38%) eligible dyads participated; 10 attended at least two workshops.
- High participant satisfaction reported (parents 86%, PBTS 73%).
- Clinically relevant, though not statistically significant, increases in transition readiness observed for PBTS and caregivers post-intervention.
Conclusions:
- The transition readiness intervention demonstrated feasibility and acceptability among PBTS and caregivers.
- Preliminary results suggest a positive impact on transition readiness skills.
- Further development and adjustments are recommended to enhance reach and efficacy for improved long-term outcomes.
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