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Targeted Transition Readiness Workshops for Pediatric Brain Tumor Survivors: Feasibility, Acceptability, and

Julie Carrier1, Tziona Lugasi2, Nathalie Labonté2

  • 1Department of Psychology, Université de Montréal, Montréal, QC H3T 1J4, Canada.

Current Oncology (Toronto, Ont.)
|January 24, 2025
PubMed

Insights

This pilot study explored a transition readiness intervention for pediatric brain tumor survivors (PBTS). The program showed promise in improving self-management skills and readiness for adult healthcare settings.

Area of Science:

  • Oncology
  • Pediatric Healthcare
  • Transition Medicine

Background:

  • Pediatric brain tumor survivors (PBTS) face long-term health challenges requiring ongoing medical care.
  • Transitioning from pediatric to adult healthcare is crucial for managing late effects of cancer treatment.
  • Effective transition readiness interventions are needed to support PBTS.

Purpose of the Study:

  • To assess the feasibility and acceptability of a targeted transition readiness intervention for PBTS.
  • To evaluate the preliminary effects of the intervention on self-management skills and transition readiness.
  • To gather insights for optimizing future intervention development.

Main Methods:

  • A pilot study involving three hybrid workshops for PBTS and their caregivers.
  • Workshops focused on disease-related self-management, social skills, and cognitive functioning.
  • Feasibility assessed via recruitment and retention; acceptability via satisfaction surveys; preliminary effects via the Transition Readiness Assessment (TRAQ) questionnaire.

Main Results:

  • 12 (38%) eligible dyads participated; 10 attended at least two workshops.
  • High participant satisfaction reported (parents 86%, PBTS 73%).
  • Clinically relevant, though not statistically significant, increases in transition readiness observed for PBTS and caregivers post-intervention.

Conclusions:

  • The transition readiness intervention demonstrated feasibility and acceptability among PBTS and caregivers.
  • Preliminary results suggest a positive impact on transition readiness skills.
  • Further development and adjustments are recommended to enhance reach and efficacy for improved long-term outcomes.

Keywords:
pediatric brain tumorpilot studiessurvivorshiptransition readiness

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