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Perceived barriers to paediatric palliative care in a Palestinian children's hospital
George Ghareeb1, Daniel Kelly2
1Senior paediatric nurse, Caritas Baby Hospital, Bethlehem, Palestinian Territories; Bethlehem University, Bethlehem, Palestinian Territories.
Insights
Barriers to pediatric palliative care in Palestine include family resistance and inadequate training. Enhancing care requires better communication, education, and organizational support for healthcare professionals.
Area of Science:
- Palliative Care Research
- Healthcare Management
- Pediatric Health
Background:
- Paediatric palliative care (PPC) provision faces challenges in low-to-middle-income countries.
- Identifying barriers is crucial for improving care quality in Palestinian hospitals.
Purpose of the Study:
- To identify barriers to PPC in a Palestinian paediatric hospital.
- To explore reasons behind these barriers.
- To provide recommendations for enhancing PPC and suggest future research directions.
Main Methods:
- A mixed-method cross-sectional study was conducted.
- Involved 61 healthcare professionals at a Palestinian paediatric hospital.
- Utilized electronic surveys (n=58) and semi-structured interviews (n=3).
Main Results:
- Significant barriers identified in patient-family, healthcare professional, and organizational domains.
- Family resistance to palliative prognosis and inadequate healthcare professional training were key quantitative findings.
- Qualitative data highlighted needs for improved communication, education, and organizational support.
Conclusions:
- Barriers to effective PPC implementation were identified.
- Emotional support, clinical guidance, education, training, and interdisciplinary collaboration are essential for enhancing PPC.
Background:
This study aimed to identify barriers to paediatric palliative care provision at one Palestinian paediatric hospital, elucidate reasons for the barriers, provide recommendations for enhancing care and identify topics for future research in other low-to middle-income countries.
Methods:
A mixed-method cross-sectional study, employing both quantitative and qualitative methods was conducted, involving 61 healthcare professionals at a paediatric hospital in Palestine. Data collection consisted of 58 participants completing an electronic survey, while three healthcare professionals participated in semi-structured interviews. Ethical approval was obtained prior to data collection.
Results:
The study identified significant barriers to paediatric palliative care, categorised into patient-family, healthcare professional and organisational domains. Quantitative data from 58 healthcare professionals revealed family resistance to a palliative prognosis and inadequate training for healthcare professionals, with mean barrier scores ranging from 3.09 to 4.00 (maximum=5.00). Qualitative insights from interviews and open-ended survey questions complemented these findings, highlighting the need for effective communication, educational enhancement and organisational support to improve the quality of care.
Conclusion:
The study identified barriers to the implementation of effective paediatric palliative care, underscoring the need for emotional support, better clinical guidance, more education and training and stronger interdisciplinary collaboration.
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