Mapping the Gaps: A Scoping Review of Virtual Care Solutions for Caregivers of Children with Chronic Illnesses
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View abstract on PubMed
Summary
This summary is machine-generated.Virtual care can support caregivers of children with chronic illnesses, but many solutions neglect their needs, especially for chronic pain management. More family-centered, accessible virtual care is needed.
Area Of Science
- Digital Health
- Caregiver Support
- Pediatric Chronic Illness
Background
- Caregivers of children with chronic illnesses face significant distress impacting family well-being.
- Existing virtual care often overlooks the specific needs of these caregivers.
- Accessible support is crucial for improving caregiver mental, physical, and child outcomes.
Purpose Of The Study
- To conduct a scoping review and create an Evidence and Gap Map (EGM) of virtual care solutions for caregivers of youth with chronic illnesses.
- To analyze virtual care interventions across a stepped care continuum.
- To identify existing virtual care strengths and critical evidence gaps.
Main Methods
- Co-designed review methodology with four caregivers.
- Systematic search of peer-reviewed literature and a call for innovations.
- Independent data coding and quality assessment of 73 included studies.
Main Results
- Most virtual care targeted caregivers of children with cancer, neurological, or complex chronic conditions.
- Interventions predominantly focused on psychological support (84%) at lower stepped care levels (apps, websites).
- Significant gaps exist in addressing caregiver physical health (15%), family counseling (19%), practical support (1%), and caregiver chronic pain.
Conclusions
- Evidence and Gap Maps (EGMs) offer innovative, visual knowledge synthesis for informed decision-making.
- The EGM identified scalable virtual care solutions and critical areas for future research.
- Future virtual care initiatives must be family-centered, accessible, equitable, and prioritize caregiver partnership.
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