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Updated: May 30, 2025

Diagnosis of Hirschsprung's Disease by Immunostaining Rectal Suction Biopsies for Calretinin, S100 Protein and Protein Gene Product 9.5
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Defining Excellence: The First Core Set of Quality Indicators for the European Paediatric Surgical Audit on

Daniel Rossi1,2,3, Anna Löf Granström1,3, Mikko Pakarinen1,4

  • 1European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA), Rotterdam, The Netherlands.

Acta Paediatrica (Oslo, Norway : 1992)
|January 26, 2025
PubMed

Insights

A consensus process developed core quality indicators for Hirschsprung

Area of Science:

  • Pediatric Surgery
  • Healthcare Quality Improvement
  • Clinical Indicators

Background:

  • Hirschsprung's disease requires specialized care.
  • Standardizing care quality across Europe is crucial.
  • Existing quality measures for Hirschsprung's disease are variable.

Purpose of the Study:

  • To establish a universally applicable core set of quality indicators for Hirschsprung's disease care.
  • To standardize and improve the quality of care for Hirschsprung's disease across Europe.
  • To facilitate benchmarking and continuous quality improvement.

Main Methods:

  • Modified Delphi method involving healthcare professionals and patient representatives across Europe.
  • Three rounds of anonymous surveys to rate quality indicators.
  • Systematic literature review and a final consensus meeting.

Main Results:

  • An international panel of 96 healthcare professionals and 8 patient representatives participated.
  • A core set of 12 baseline characteristics and 14 quality indicators were established.
  • Six of the top 10 indicators were prioritized by both healthcare professionals and patient representatives.

Conclusions:

  • A consensus-based core set of quality indicators for Hirschsprung's disease care was successfully developed.
  • These indicators will be integrated into the European Paediatric Surgical Audit framework.
  • The indicators aim to enhance patient outcomes and quality of care for children with Hirschsprung's disease.
Abstract

Keywords:
Hirschsprung's diseaseauditingquality improvementquality indicators

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