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An Autoethnographic Account of Familial Mediterranean Fever: A Turkish Patient's Discovery of Spiritual Meaning

Cigdem Yuksel1

  • 1Psychiatric Nursing Department, Gulhane Faculty of Nursing, University of Health Sciences, Turkiye, 06010, Etlik, Ankara, Turkey. cyuksel2006@gmail.com.

Journal of Religion and Health
|January 27, 2025
PubMed

Insights

Familial Mediterranean Fever (FMF) is a genetic autoinflammatory disorder. This autoethnographic study explores spiritual meaning discovery through FMF, offering insights for holistic patient care.

Area of Science:

  • Rheumatology
  • Genetics
  • Psychology

Background:

  • Familial Mediterranean Fever (FMF) is a chronic genetic autoinflammatory disorder.
  • FMF presents with recurrent febrile episodes and systemic inflammation affecting multiple organs.
  • Understanding the patient experience is crucial for effective management of chronic illness.

Purpose of the Study:

  • To provide an autoethnographic account of a Turkish FMF patient's lived experience.
  • To explore the discovery of spiritual meaning throughout the course of FMF.
  • To offer insights for healthcare professionals in providing holistic FMF patient care.

Main Methods:

  • Autoethnography and narrative-based analysis.
  • Self-reflexive discourse to examine personal experiences.
  • Exploration of four distinct stages of spiritual meaning discovery.

Main Results:

  • Identified four stages of spiritual meaning discovery: 'omnipotent me,' 'God's punishment,' 'God's test,' and 'God's mercy.'
  • Detailed the grief reactions associated with loss of health due to FMF.
  • Highlighted the importance of a spiritual lens in understanding the FMF experience.

Conclusions:

  • FMF significantly impacts patients' lives, necessitating a holistic approach to care.
  • Spiritual meaning discovery can be a coping mechanism for chronic illness.
  • Recommendations are provided for mental health professionals and rheumatologists to enhance treatment adherence and patient well-being.
Keywords:
AutoethnographyChronic illnessFamilial Mediterranean feverQualitative studySpirituality

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