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Cleft Lip and Palate Research in the United Kingdom: Advances in Clinical Psychological Knowledge and Future
Matthew Hotton1, Laura Shepherd2, Nicola M Stock3
1Oxford Institute for Clinical Psychology Training and Research, University of Oxford, Oxford, United Kingdom of Great Britain and Northern Ireland.
Abstract:
In 2012, the James Lind Alliance (JLA) worked with individuals with cleft lip and/or palate (CL/P), their families and clinicians to identify priority areas for future research. This article reviews progress conducted in the United Kingdom in the 3 JLA priorities most closely related to Clinical Psychology. It then builds upon the original priorities to identify 4 future directions, based on contemporary literature and in-depth discussions between clinical and research experts. Finally, recommendations for next steps toward meeting these future directions are outlined, including consistent outcome measurement, engaging diverse groups of people with CL/P and embedding the principles of codesign.
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