Perceptions and Attitudes of People With Cancer and Diabetes Towards Patient Guidelines: A Mixed Methods Study

Area of Science:

• Health Services Research
• Patient Engagement
• Clinical Practice Guidelines

Background:

• Patient guidelines (PGs) are essential tools for healthcare decision-making.
• Understanding patient perceptions of PGs is crucial for their effective implementation.

Purpose of the Study:

• To explore patient perceptions and attitudes towards PGs.
• To identify factors influencing patient use and adoption of PGs.

Main Methods:

• Exploratory sequential mixed-methods design using semi-structured interviews and questionnaires.
• Qualitative interviews with patients (diabetes, oncology) and clinicians, followed by a quantitative survey of 400 patients.

Main Results:

• Limited awareness of PGs (26.5%), but generally positive attitudes (73.0%).
• Patients prefer tailored recommendations considering individual factors (age, comorbidity, weight) and value credibility, accessibility, and usability.
• Lack of credibility (34.8%) and general recommendations were key barriers; healthcare professionals are trusted sources for PG dissemination.

Conclusions:

• PGs must be individualized, acknowledging patient diversity and specific needs for informed decision-making.
• Dissemination strategies should leverage healthcare professionals to enhance PG adoption and patient engagement.