Improving the diagnostic accuracy of referrals for papilloedema (DIPP) study: protocol for a mixed-methods study

Area of Science:

• Ophthalmology
• Neurology
• Health Services Research

Background:

• Papilloedema can indicate life-threatening conditions like brain tumors, necessitating urgent referral.
• Benign optic nerve variations (pseudopapilloedema) are often misidentified, leading to increased, unnecessary hospital referrals.
• Increased referrals strain hospital services and may delay care for patients with true papilloedema.

Purpose of the Study:

• To develop evidence-based guidelines and educational materials for healthcare professionals to accurately identify papilloedema.
• To improve diagnostic and referral pathways for suspected papilloedema in England.
• To reduce unnecessary hospital referrals and optimize healthcare resource allocation.

Main Methods:

• Collecting qualitative and quantitative data via Freedom of Information requests to Integrated Care Boards.
• Conducting surveys and interviews with community and hospital healthcare professionals.
• Utilizing a Delphi process to achieve consensus on best practices among experts, commissioners, and patients.

Main Results:

• Data collection on current referral practices for suspected papilloedema is underway.
• Evidence gathering will inform the development of consensus-based guidelines.
• Guidelines and educational materials will be created for national implementation.

Conclusions:

• Accurate identification of papilloedema is crucial for timely diagnosis of serious conditions.
• Improved guidelines and education can reduce misdiagnosis and inappropriate referrals.
• The DIPP study aims to enhance patient care and healthcare system efficiency.