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Published on: July 4, 2018
On comfort in palliative care.
Emma Kirby1, Rebecca McLaughlan2, Frances Bellemore3
1School of Social Sciences, University of New South Wales, Sydney, Australia.
Comfort in palliative care involves managing symptoms and enhancing patient experience through everyday gestures. It is a dynamic, relational process that provides lasting effects beyond momentary interventions.
Area of Science:
- Palliative Care
- Sociology of Health and Illness
- Psychology
Background:
- Comfort is central to palliative care, encompassing symptom management and the patient's subjective experience.
- Comfort is often viewed as transient due to the dynamic nature of symptoms and patient needs in end-of-life care.
- Understanding the multifaceted nature of comfort is crucial for improving care delivery.
Purpose of the Study:
- To explore how comfort is configured and facilitated through everyday actions in palliative care.
- To understand the lived experiences of patients, family carers, staff, and volunteers regarding comfort.
- To reveal the social, relational, and dynamic aspects of comfort in end-of-life care.
Main Methods:
- Qualitative study employing in-depth interviews.
- Utilized photo elicitation to gather rich data.
- Explored accounts from patients, family carers, staff, and volunteers in an Australian palliative care service.
Main Results:
- Comfort is experienced as a dynamic interplay between bodies, environments, and social relations.
- Familiarity, reliability, intimacy, recognition, and flexibility are key facilitators of comfort.
- Comforting gestures, though often momentary, create lasting affective resonances.
Conclusions:
- Comfort in palliative care is a complex, relational, and ongoing process, not merely a transient state.
- Everyday gestures and the environment significantly contribute to the experience of comfort.
- Recognizing the lasting impact of comfort is essential for understanding what matters to individuals in palliative care.
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