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Updated: May 30, 2025

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Operationalizing the ICF Core Sets for Autism and ADHD: A Multiple-Methods Feasibility Study.

Lovisa Alehagen1, John Hasslinger2,3, Elina Wessman2,3

  • 1Center of Neurodevelopmental Disorders (KIND), Department of Women's and Children's Health, Centre for Psychiatry Research , Karolinska Institutet & Region Stockholm, Stockholm, Sweden. lovisa.alehagen@ki.se.

Journal of Autism and Developmental Disorders
|January 30, 2025
PubMed
Summary
This summary is machine-generated.

The ICF CoreSets platform is a user-friendly tool for assessing functioning in autism and ADHD. User feedback led to platform improvements, making it suitable for research and clinical practice.

Keywords:
Core setsFunctioningICFInternational classification of functioning, disability and healthWorld health organization

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Area of Science:

  • Rehabilitation Medicine
  • Disability Studies
  • Health Informatics

Background:

  • The International Classification of Functioning, Disability and Health (ICF) provides a standardized framework for assessing individual functioning.
  • ICF Core Sets have been developed for autism and ADHD to enhance accessibility and applicability.
  • Operationalizing ICF Core Sets on an online platform, the ICF CoreSets platform, aims to improve their use in research and practice.

Purpose of the Study:

  • To describe the iterative development process of the ICF CoreSets platform.
  • To examine user feedback on the operationalization of ICF Core Sets and the platform's feasibility for assessing functioning in autism and ADHD.
  • To refine the platform based on user input for improved usability and application.

Main Methods:

  • A multiple-methods study involving the collection of 678 assessments from the ICF CoreSets platform.
  • Gathering qualitative feedback through interviews and focus groups with individuals with autism/ADHD, relatives, general population, and professionals.
  • Analyzing qualitative data via content analysis and quantitative data using univariate and descriptive techniques.

Main Results:

  • The ICF CoreSets platform was found to be feasible and user-friendly.
  • User feedback identified areas for improvement, leading to platform and operationalization refinements.
  • The platform, after revisions, is considered adequate for research and practice and ready for psychometric standardization.

Conclusions:

  • The iterative development and user feedback process has resulted in a refined ICF CoreSets platform.
  • The platform demonstrates feasibility and user-friendliness for functional assessment in autism and ADHD.
  • The operationalized ICF Core Sets on the platform are suitable for research and practice, pending psychometric standardization.