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Do patients experience a personalized patient leaflet as personal?

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Patients often do not recognize personalized patient leaflets (PPLs) as personal. Pharmacy staff should highlight PPL elements to improve understanding, especially for those with limited health literacy.

Keywords:
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Area of Science:

  • Patient experience
  • Health literacy
  • Medication adherence

Background:

  • Personalized patient leaflets (PPLs) aim to improve medication understanding and adherence.
  • The patient's perception of personalization and the influence of health literacy are not well understood.

Purpose of the Study:

  • To explore patient experiences with the personal nature of PPLs.
  • To investigate the role of health literacy in recognizing personalized information.

Main Methods:

  • Semi-structured interviews were conducted with 32 participants in community pharmacies.
  • Personalized patient leaflets were tailored to individual patient characteristics and medical information.
  • Thematic analysis was used to analyze verbatim interview transcripts.

Main Results:

  • Over half of participants did not recognize the personalized nature of the PPL, perceiving it as general information.
  • Recognition of personalization was primarily linked to medication overviews, personal details, and direct address (e.g., 'your dosage').
  • Patients with adequate health literacy were better at recognizing personalized information compared to those with limited health literacy.

Conclusions:

  • Patients generally do not expect medication information leaflets to be personalized.
  • Pharmacy staff should actively point out personalized elements within leaflets during consultations.
  • This guidance can enhance patient recognition and understanding, particularly benefiting individuals with limited health literacy and potentially improving correct medication use.