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Exploring the burden of treatment in patients' experiences of chronic condition management: A mixed-method study in
Javier Roberti1,2, María Belizán1, Natali Ini1,2
1Institute for Clinical Effectiveness and Health Policy (IECS), Buenos Aires, Argentina.
Abstract:
ObjectiveThis study investigated how patients managed their chronic diseases, focusing on burden of treatment, within the primary care level in Mendoza Province, Argentina.MethodThe study used a mixed-methods approach, including a qualitative component with a purposive sampling of patients with diabetes, hypertension, or depression using primary care services, and a quantitative component with secondary analysis of databases from public and social security. Ten focus group sessions were conducted at primary healthcare centers in urban and rural areas. The Burden of Treatment theory was used to frame the analysis.ResultsThe study found that accessing care was difficult due to appointment difficulties and long waiting times, and obtaining medication and laboratory tests at secondary centers was also problematic. Non-emergency hospital care required primary care referrals, and users in rural areas faced access problems. Financial constraints were significant, with co-payments in social security sector, transportation costs, and lost work revenue. Strategies employed included networking, emergency service use, careful planning, and taking loans.ConclusionThis study underscores the complex implications of chronic disease management in a subnational healthcare system and provides insights for policymakers and healthcare providers.
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