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Barriers and Facilitators of Home Programmes in Children With Cerebral Palsy: A Systematic Review and a Metasynthesis
Mª Inmaculada Medina-Valera1,2, Aarón Fernández-Del Olmo3,4, Elena Pinero-Pinto1
1Faculty of Nursery, Physiotherapy and Podology. Department of Physiotherapy, University of Seville, Seville, Spain.
Insights
Implementing home programs (HP) for children with cerebral palsy (CP) faces barriers like time constraints and limited support. Facilitators include training, daily routine integration, and strong family-professional communication for successful HP.
Area of Science:
- Pediatrics
- Rehabilitation Medicine
- Family-Centered Care
Background:
- Home programs (HP) are a highly supported treatment for children with cerebral palsy (CP).
- Implementation of HP can present significant challenges for families and healthcare providers.
- A systematic review is needed to identify factors influencing HP effectiveness.
Purpose of the Study:
- To systematically review the literature on barriers and facilitators to implementing home programs (HP) for children with cerebral palsy (CP).
- To synthesize findings regarding challenges and supportive elements in HP delivery for pediatric CP.
Main Methods:
- A systematic literature search was conducted across major databases (Web of Science, Scopus, ERIC, PubMed, CINAHL).
- Inclusion criteria focused on home-based therapies for children with CP (0-8 years) and their families.
- Qualitative content analysis using inductive coding was employed, with risk of bias assessed using Cochrane tools.
Main Results:
- Twenty-one articles were selected from 1,336, involving 523 families and professionals.
- Six key themes emerged: participation, personal cost/social support, family impact, training, professional role, and efficacy.
- Quantitative analysis was descriptive, indicating a superficial exploration of HP research.
Conclusions:
- Key barriers include lack of time, inadequate social support, and emotional distress.
- Facilitators involve comprehensive training, integrating therapy into daily routines, and effective family-professional communication.
- Further research is needed to analyze family variables and confounding factors in HP implementation.
Introduction:
One of the treatments with the greater scientific support for children with cerebral palsy (CP) are home programmes (HP). However, its implementation may be complex in some cases. A systematic review was conducted to explore the existing literature on the following question: What are the barriers and facilitators to implementing HP for children with CP?
Material And Methods:
The articles were extracted from the Web of Science (WoS), Scopus, ERIC, PubMed and CINAHL databases.
Inclusion Criteria:
articles based on therapies conducted at home, for children with CP aged 0-8 years and their families, published in English and Spanish.
Exclusion Criteria:
reviews, studies of cases and controls and one-case studies. The risk of bias was assessed through Cochrane tools Risk of Bias (RoB) I, RoB 2 and RoB E.
Results:
Twenty-one articles were selected from a total of 1.336, with 523 families and professionals. A qualitative research was carried out through content analysis using inductive coding and subsequent analytical categorization within an interpretative paradigm. Six themes were obtained: participation, personal cost and social support, family impact, training, professional role and efficacy. The quantitative results were analysed descriptively. They address HP research in a superficial manner.
Conclusions:
Barriers: lack of time or availability to attend to the children one by one, poor economic and social support networks and sensitive emotional situation. Facilitators: training, adapted treatment objectives, activities within the daily routine and fluid family-professional communication.
Limitation:
Only one article could be found that analysed family variables, considering the possible confounding variables. There is no funding source for this review. Registered in PROSPERO with code number: CRD42023477735.
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