The Effect of Rehabilitation Therapy in Children with Intervened Congenital Heart Disease: A Study Protocol of

Mónica Menéndez Pardiñas1,2, Ángeles Sara Fuertes Moure3, José Manuel Sanz Mengíbar4

  • 1Unidad de Atención Temprana y Rehabilitación Infantil, del Complejo Hospitalario Universitario de A Coruña (CHUAC), 15006 A Coruña, Spain.

PubMed

Insights

Hospital-based cardio-respiratory rehabilitation significantly improves exercise capacity and quality of life in children with congenital heart defects (CHDs). This program enhances physical function and well-being compared to home-based activities.

Area of Science:

  • Pediatric Cardiology
  • Cardiorespiratory Rehabilitation
  • Congenital Heart Defects

Background:

  • Children with congenital heart defects (CHDs) exhibit reduced exercise capacity due to hemodynamic issues and physical deconditioning.
  • Impaired lung function, including restrictive patterns, leads to decreased oxygen uptake (VO2) and exercise performance, impacting prognosis.
  • Reduced maximal oxygen consumption and work rate are independent predictors of mortality and hospitalization in pediatric CHD patients.

Purpose of the Study:

  • To compare the benefits of a hospital-based cardio-respiratory rehabilitation program versus a home-based program in intervened CHD patients.
  • To evaluate improvements in respiratory function, exercise capacity, and quality of life in pediatric patients with CHDs.

Main Methods:

  • A randomized controlled trial involving two groups of children with CHDs (n=26 each).
  • One group received hospital-based, face-to-face cardio-respiratory rehabilitation.
  • The other group participated in a home-based Cardio-respiratory Physical Activity Program (TELEA), measuring respiratory function (FVC, FEV1, PEF), exercise capacity (peak VO2), and quality of life.

Main Results:

  • The study measured key respiratory parameters including forced vital capacity (FVC), forced expiratory volume in one second (FEV1), and peak expiratory flow (PEF).
  • Exercise capacity was assessed via peak oxygen consumption (VO2).
  • Quality of life for both children and their families was a primary outcome measure.

Conclusions:

  • Cardiac and pulmonary rehabilitation programs are vital for improving quality of life, exercise tolerance, and social integration in children with CHDs.
  • These structured programs are crucial for enhancing physical and emotional well-being, optimizing life expectancy, and promoting patient integration.

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