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Active support as good support in group homes? A longitudinal interview study with service users

Jenny Aspling¹, Veronica Svärd², Magnus Tideman¹

¹Department of Social Sciences, Marie Cederschiöld University, Stockholm, Sweden.

Journal of Intellectual & Developmental Disability

|February 17, 2025

Abstract

Background:

Support from staff plays an important role in quality of life for people with intellectual disability. This study focuses on service users' views of Active Support as good support and whether Active Support increases the quality of everyday support in group homes.

Method:

Nine service users were interviewed at baseline and at follow-up one year after staff received Active Support training. Thematic analyses were used to develop themes.

Results:

Three main themes were created: (1) Home is more than just a place, it is a feeling; (2) Good care is caring with accessible communication; and (3) Time is precious. Participants were more satisfied with most of the support at follow-up, particularly choice-making, control in everyday life, relationships, and emotional support.

Conclusions:

Active Support corresponds well with service users' perceptions of good support. In future studies of Active Support service users' voices should be a part of the follow-up.

Keywords:

Active support ethic of care group homes intellectual disability interviews support workers

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