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Dataset for a qualitative interview study exploring the barriers and facilitators to using and recommending aspirin for cancer prevention

  • 0Leeds Institute of Health Sciences, University of Leeds, Leeds, UK.
Health Psychology and Behavioral Medicine +

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February 17, 2025

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February 17, 2025

View abstract on PubMed

Summary

This summary is machine-generated.

This study explored patient and healthcare professional views on aspirin for Lynch syndrome cancer prevention. Findings highlight the need to balance data confidentiality with reusability when sharing qualitative research.

Area Of Science

  • Oncology
  • Genetics
  • Public Health

Background

  • Lynch syndrome significantly increases colorectal cancer risk.
  • Aspirin is a potential chemopreventive agent for individuals with Lynch syndrome.
  • Qualitative data sharing for Lynch syndrome research presents unique challenges.

Purpose Of The Study

  • To explore perspectives of people with Lynch syndrome and healthcare professionals regarding aspirin use for cancer prevention.
  • To create and share a qualitative dataset of interview transcripts in a restricted access repository.

Main Methods

  • Interviews were conducted with 15 individuals with Lynch syndrome and 23 healthcare professionals (GPs, pharmacists, genetic counselors, specialist clinicians).
  • The Theoretical Domains Framework informed the interview schedule.
  • Interviews were conducted via video or telephone.

Main Results

  • 12 anonymised transcripts from people with Lynch syndrome and 8 from GPs were deposited in a restricted repository.
  • Data sharing was conditional on consent for non-commercial research, learning, or teaching.
  • Anonymisation, while protecting identity, potentially reduced data usability.

Conclusions

  • Sharing qualitative data requires balancing participant confidentiality with data reusability.
  • This study contributes a valuable, albeit restricted, qualitative dataset for Lynch syndrome research.

Keywords:

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