"Diagnose & Adios": Multi-Perspective Insights on Formal Service Use in Dementia Family Caregivers
These videos have been matched automatically. Contact us if they are not relevant.
These videos have been matched automatically. Contact us if they are not relevant.
View abstract on PubMed
Summary
This summary is machine-generated.Many dementia caregivers need home and community-based services (HCBS) but face barriers accessing them. Understanding these challenges is key to improving support for family caregivers and enhancing their preparedness.
Area Of Science
- Gerontology
- Public Health
- Sociology
Background
- Dementia family caregiving is demanding and intensifies over time.
- Home and Community-Based Services (HCBS) can improve caregiver preparedness but have low uptake.
- A gap exists between caregiver needs for and utilization of HCBS.
Purpose Of The Study
- To explore the disconnect between caregiver needs for and utilization of HCBS.
- To identify barriers impeding HCBS access and use.
- To inform interventions for enhancing caregiver support.
Main Methods
- Five focus groups conducted with dementia family caregivers (n=13) and experts (n=17).
- Data analyzed using a deductive-inductive thematic approach.
- Pearlin et al.'s (1990) stress process model provided the theoretical framework.
Main Results
- Three concepts emerged: 'Pathways to Preparedness,' 'Multi-Level Barriers,' and 'Bridging the Gap.'
- Caregivers require support in dementia education, mental health, financial/legal navigation, and emergency readiness.
- Barriers exist at individual, provider, and systemic levels, hindering HCBS access.
Conclusions
- The US HCBS system is complex, with multidimensional barriers affecting caregiver access.
- Personalized navigation and technology may bridge the gap between needs and services.
- Findings can guide web-based interventions to boost caregiver knowledge and HCBS utilization.
These videos have been matched automatically. Contact us if they are not relevant.
These videos have been matched automatically. Contact us if they are not relevant.
Related Concept Videos
Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
• Purpose: Documentation in long-term care facilities is critical for interprofessional resident assessment and planning. It ensures that all aspects of a resident's care - from medical needs to daily living assistance - are thoroughly...
Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
An interdisciplinary team includes many healthcare professionals working together and utilizing their skills, knowledge, and expertise to provide holistic and quality patient care.
Physicians
The physician's primary responsibility is to diagnose illness and direct the medical or surgical treatment of the condition. The authority to admit patients to a healthcare agency or institution and practice care within that setting is granted to physicians by the healthcare agency or institution...
The nursing process provides a clinical decision-making framework for patients and families to establish and implement a personalized care plan. Since part of the nurse's duties is to teach patients, the steps of the nursing process are the most effective way to approach instruction. The nursing process and the teaching-learning process are inextricably linked.
It is critical to determine the patient's learning needs during the assessment. Determination of learning needs compounds data...
An interdisciplinary team includes many healthcare professionals working together and utilizing their skills, knowledge, and expertise to provide holistic and quality patient care. Here are a few more healthcare professionals.
Physical Therapist
A physical therapist (PT) aims to restore function or prevent additional impairment in a patient following an injury or disease. Massage, heat, cold, water, sonar waves, exercises, and electrical stimulation are some treatments used by PTs to treat...