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Successful (and Unsuccessful) Recruitment Approaches and Participant Loss in a Down Syndrome Survey

Mikayla Shaffer1, John Patrick T Co1, Karen Donelan1

  • 1Mikayla Shaffer, Massachusetts General Hospital, John Patrick T. Co, Harvard Medical School, Karen Donelan, Brandeis University and Massachusetts General Hospital, Brian G. Skotko, Massachusetts General Hospital and Harvard Medical School, Amy Torres, Massachusetts General Hospital, Jonathan P. Winickoff, Massachusetts General Hospital and Harvard Medical School, and Stephanie L. Santoro, Massachusetts General Hospital and Harvard Medical School.

American Journal on Intellectual and Developmental Disabilities
|February 25, 2025
PubMed

Keywords:
Down syndromehealth-related quality of lifelow incidence medical conditionssurvey methodstrisomy 21

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