Pediatric central nervous system (CNS) tumors cognitive and psychosocial assessment: key highlights from the Italian (AIEOP) consensus conference

Area of Science:

• Pediatric Oncology
• Neuropsychology
• Psychosocial Care

Background:

• Pediatric central nervous system (CNS) tumors present complex challenges for affected children and their families.
• Existing care pathways lack standardized psychological and neuropsychological assessment protocols.

Purpose of the Study:

• To establish a consensus process for psychological/neuropsychological assessment of pediatric CNS tumor patients in Italy.
• To improve accessibility to standardized and shared assessment protocols across different centers.

Main Methods:

• Formation of a psychosocial working group (GDL) within the Associazione Italiana Ematologia Oncologia Pediatrica (AIEOP).
• Initiation of a consensus process involving psycho-oncologists and neuropsychologists.
• Proposal of standardized psychological and neuropsychological instruments.

Main Results:

• Development of a framework for psychological and neuropsychological assessment tailored to pediatric CNS tumor patients.
• Recommendation for a shared, tailor-made approach to assessment across multiple centers.
• Identification of specific standardized instruments for evaluation.

Conclusions:

• The consensus process provides a foundation for standardized psychological and neuropsychological assessment in pediatric CNS tumor care.
• Implementation of these shared protocols can enhance the quality of psychosocial support for patients and families.
• This initiative promotes a collaborative and consistent approach to care across Italian pediatric oncology centers.