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Updated: May 4, 2026

Multi-Modal Home Sleep Monitoring in Older Adults
Published on: January 26, 2019
Social Support and Sleep Quality Among Bereaved AD/ADRD Caregivers: A Qualitative Study
Yingyan Huang1, Julie Fleury1, Megan E Petrov1
1Edson College of Nursing and Health Innovation, Arizona State University, Phoenix, AZ, USA.
Background:
Nearly 7 million adults aged 65 and above in the United States live with Alzheimer's disease (AD) and AD-related dementias (AD/ADRD), and it is the fifth most common cause of death. Bereaved AD/ADRD informal caregivers report high rates of sleep disturbances that may impair daily functioning. Social support is a potentially modifiable resource fostering sleep quality; however, little is known regarding the contributing role of social support to sleep quality among bereaved AD/ADRD caregivers.
Objective:
This study explored the contributing role of social support to sleep quality among bereaved AD/ADRD caregivers posting to an online forum.
Methods:
A qualitative descriptive design addressed the research objective. We collated 1771 forum threads comprising 2 012 195 words posted by bereaved AD/ADRD caregivers on the ALZConnected forum (2011-2023). Posts related to sleep were extracted using the keywords "bed," "dream," "nap," "sleep," "slept," "wake," and "woke."
Results:
A total of 178 threads contained information relevant to the contribution of social support to sleep quality in bereaved AD/ADRD caregivers. Using qualitative content analysis, we identified 3 themes: Restorative Function (Safe/Secure), Relational Identity Function (Belonging/Connection), and Comforting Presence Function (Warmth/Comfort).
Conclusion:
Findings further the understanding of the social context in which sleep quality in bereaved AD/ADRD caregivers is experienced. Findings from this study may inform clinical practice and research efforts aimed at enhancing sleep quality through social support in bereaved AD/ADRD caregivers.
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