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Stigma And Discrimination Experienced By Black Women With Endometriosis In The Washington, Dc, Metropolitan Area: A Pilot Of The Endo-served Study.

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Stigma And Discrimination Experienced By Black Women With Endometriosis In The Washington, Dc, Metropolitan Area: A Pilot Of The Endo-served Study.

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Published on: December 21, 2012

Stigma and discrimination experienced by Black women with endometriosis in the Washington, DC, Metropolitan area:

Julia Mandeville¹, Anna Z Pollack¹, Lauren Kornegay²

¹Department of Global & Community Health, George Mason University, Fairfax, Virginia, USA.

International Journal of Gynaecology and Obstetrics: the Official Organ of the International Federation of Gynaecology and Obstetrics

|March 1, 2025

View abstract on PubMed

Summary

This summary is machine-generated.

Black women with endometriosis in Washington, DC, experience significant stigma, particularly when healthcare providers make assumptions based on racial stereotypes. This stigma can lead to delayed treatment and worse health outcomes, underscoring the need for culturally responsive care.

Keywords:

black women discrimination endometriosis stigma

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Area of Science:

Reproductive Health
Health Equity
Medical Sociology

Background:

Medical racism contributes to health disparities for Black individuals in the US.
Research on endometriosis-associated stigma has largely excluded Black populations, creating a knowledge gap.
Understanding stigma's intersection with racism in endometriosis is crucial for addressing health inequities.

Purpose of the Study:

To assess the stigma experiences of Black women with endometriosis in the Washington, DC area.
To explore how racism and stigma impact endometriosis care for Black women.
To identify potential links between stigma, healthcare provider bias, and health outcomes.

Main Methods:

An anonymous cross-sectional survey was administered to Black women with endometriosis.

Data collected included demographics, healthcare experiences, stigma levels (enacted, anticipated, internalized), and depression.

Statistical analysis compared stigma scores based on reported experiences with healthcare providers and racial discrimination.

Main Results:

Mean scores for enacted, anticipated, and internalized stigma were reported (2.0, 2.3, and 2.5 respectively on a 1-5 scale).
Higher anticipated stigma was associated with healthcare providers making assumptions based on racial stereotypes (2.6 vs. 1.7).
Participants who changed providers due to racial discrimination reported higher anticipated stigma (2.9 vs. 1.7).

Conclusions:

Stigma experiences, particularly those related to racial bias from healthcare providers, are prevalent among Black women with endometriosis.
These stigma experiences may contribute to delayed treatment and interrupted care continuity, potentially worsening health outcomes.
Culturally responsive care practices are essential to mitigate medical racism and address endometriosis stigma in Black women.