A Toolkit for Healthcare Transition for Adolescents With Classical Myeloproliferative Neoplasms

Area of Science:

• Hematology
• Pediatric Oncology
• Adolescent Medicine

Background:

• Classical myeloproliferative neoplasms (MPNs) are increasingly diagnosed in adolescents.
• Existing healthcare transition protocols are insufficient for young MPN patients.
• A structured approach is needed for transitioning MPN care from pediatric to adult settings.

Purpose of the Study:

• To develop tools for facilitating high-quality healthcare transition for adolescent MPN patients.
• To address the lack of specific guidance for MPN patient transitions.
• To improve continuity of care for young adults with MPNs.

Main Methods:

• Convened an international expert panel in pediatric and adult MPN care.
• Developed three distinct tools: a physician education module, a transition readiness assessment, and a consensus-based practice recommendations statement.
• Focused on creating resources for a seamless transition process.

Main Results:

• Successfully developed a physician education tool to enhance provider knowledge.
• Created a transition readiness assessment tool for evaluating patient preparedness.
• Established a consensus statement outlining practice recommendations for MPN healthcare transitions.

Conclusions:

• The developed tools aim to significantly improve the healthcare transition experience for adolescents with MPNs.
• These resources provide a framework for managing the complexities of transitioning young patients to adult care.
• Further evaluation of the readiness assessment tool with adolescent patients is planned.