Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Specialized Care Centers and Settings-I01:30

Specialized Care Centers and Settings-I

907
Specialized care settings or centers are situated in convenient locations within the community and offer care to a specific group or population. They consist of daycare facilities, mental health facilities, rural health facilities, educational institutions, industries, shelters for the homeless, and rehabilitation facilities.
Daycare centers
They provide several functions. Some facilities care for healthy newborns and children whose parents work, while others are medically focused and care for...
907
Specialized Care Centers and Settings-II01:30

Specialized Care Centers and Settings-II

692
Rural Health Centers
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
692
Community Based Intervention01:30

Community Based Intervention

28
Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
28
Methods Of Healthcare Delivery System01:26

Methods Of Healthcare Delivery System

3.1K
At the different levels of the healthcare system, we see varying methods of healthcare used. These methods include managed care systems, case management, and primary healthcare.
Managed Care System:
The managed care system is designed to control the cost while maintaining the quality of care. The patient's care from admission to discharge is planned by the primary care provider or the case manager, also known as the gatekeeper. In a managed care system, the number of care providers is...
3.1K
Interdisciplinary Care: The Health Care Team-I01:21

Interdisciplinary Care: The Health Care Team-I

1.6K
An interdisciplinary team includes many healthcare professionals working together and utilizing their skills, knowledge, and expertise to provide holistic and quality patient care.
Physicians
The physician's primary responsibility is to diagnose illness and direct the medical or surgical treatment of the condition. The authority to admit patients to a healthcare agency or institution and practice care within that setting is granted to physicians by the healthcare agency or institution...
1.6K
Learning Disabilities01:25

Learning Disabilities

81
Learning disabilities are cognitive disorders caused by neurological impairments that affect cognitive functions like language and reading, without indicating overall intellectual or developmental challenges. These disabilities differ from global intellectual or developmental disabilities as they are limited to distinct cognitive functions. Common learning disabilities include dysgraphia, dyslexia, and dyscalculia, each of which impacts unique aspects of learning.
Dyslexia
Dyslexia is a...
81
  1. Home
  3. Research Domains
  5. Health Sciences
  7. Health Services And Systems
  9. Family Care
  11. Toward Digital Caregiving Network Interventions For Children With Medical Complexity Living In Socioeconomically Disadvantaged Neighborhoods

Toward digital caregiving network interventions for children with medical complexity living in socioeconomically disadvantaged neighborhoods

Nicole E Werner1,2, Makenzie Morgen3, Anna Jolliff1,2

  • 1Department of Anesthesiology, Vanderbilt University School of Medicine, Nashville, TN 37203, United States.

JAMIA Open
|March 5, 2025

Related Experiment Videos

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
11:21

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data

Published on: July 27, 2018

8.2K
Author Spotlight: Automated Deep Brain Stimulation for Parkinson's Disease - Exploring the Possibilities and Challenges of Home Monitoring
06:32

Author Spotlight: Automated Deep Brain Stimulation for Parkinson's Disease - Exploring the Possibilities and Challenges of Home Monitoring

Published on: July 14, 2023

1.2K
Bridging the Technology Divide in the COVID-19 Era: Using Virtual Outreach to Expose Middle and High School Students to Imaging Technology
09:55

Bridging the Technology Divide in the COVID-19 Era: Using Virtual Outreach to Expose Middle and High School Students to Imaging Technology

Published on: September 28, 2022

1.6K

View abstract on PubMed

Summary
This summary is machine-generated.

Digital interventions for children with medically complex conditions (CMC) must consider family caregiving networks. Neighborhood socioeconomic status impacts network structure, influencing intervention design for these vulnerable families.

Keywords:
children with medical complexityconsumer health information technologyinformal caregiversneighborhood socioeconomic disadvantage

Related Experiment Videos

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
11:21

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data

Published on: July 27, 2018

8.2K
Author Spotlight: Automated Deep Brain Stimulation for Parkinson's Disease - Exploring the Possibilities and Challenges of Home Monitoring
06:32

Author Spotlight: Automated Deep Brain Stimulation for Parkinson's Disease - Exploring the Possibilities and Challenges of Home Monitoring

Published on: July 14, 2023

1.2K
Bridging the Technology Divide in the COVID-19 Era: Using Virtual Outreach to Expose Middle and High School Students to Imaging Technology
09:55

Bridging the Technology Divide in the COVID-19 Era: Using Virtual Outreach to Expose Middle and High School Students to Imaging Technology

Published on: September 28, 2022

1.6K

Area of Science:

  • Sociotechnical systems in healthcare
  • Digital health interventions
  • Family caregiving networks

Background:

  • Families of children with medically complex conditions (CMC) often reside in socioeconomically disadvantaged neighborhoods, impacting their health and caregiving networks.
  • The complex sociotechnical context of care for CMC necessitates tailored digital interventions.
  • Neighborhood characteristics can shape the structure and function of caregiving networks.

Purpose of the Study:

  • To explore the structures, functions, barriers, and facilitators of caregiving networks for CMC in disadvantaged neighborhoods.
  • To inform the design of digital network interventions for these families.

Main Methods:

  • Conducted 6 virtual focus groups with primary and secondary caregivers of CMC living in socioeconomically disadvantaged neighborhoods.
  • Included 18 primary caregivers (parents/guardians) and 9 secondary caregivers (other family, in-home nurses).
  • Utilized thematic analysis to analyze focus group transcripts.

Main Results:

  • Identified four key themes influencing digital network intervention design.
  • Caregiving networks (average size 3.9) are influenced by family communication preferences, external forces, and neighborhood assets.
  • Gaps in secondary caregiver roles create vulnerability and increase primary caregiver burden.

Conclusions:

  • Caregiving networks for CMC in disadvantaged neighborhoods are dynamic and influenced by multiple factors.
  • Findings provide a foundation for designing effective digital network interventions.
  • Interventions must account for family preferences, external pressures, and neighborhood resources.