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Children with cancer in India: An ethical framework for practice

Poonam Bagai1, Vikramjit S Kanwar2, Franco A Carnevale3

  • 1Founder Chairman, Cankids Kidscan; Vice Chairman, Pallium India, INDIA.

Indian Journal of Medical Ethics
|March 5, 2025
PubMed

Insights

A new ethical framework addresses childhood cancer care in India. It aims to improve communication, symptom management, and equity for young patients facing ethical challenges.

Area of Science:

  • Pediatric Oncology
  • Bioethics
  • Healthcare Policy

Background:

  • Childhood cancer is a leading non-communicable disease cause of death in Indian children aged 5-14.
  • Ethical concerns exist in pediatric cancer care in India, with a lack of established clinical practice standards.
  • Children experience distress when excluded from cancer care decisions.

Purpose of the Study:

  • To develop an ethical framework for guiding clinical practice in childhood cancer care in India.
  • To address identified ethical concerns, including communication, symptom management, and equity.

Main Methods:

  • Normative analysis of documents concerning healthcare providers and children in India.
  • Stakeholder consultations with childhood cancer survivors, parents, and clinicians.

Main Results:

  • The ethical framework consists of twelve key ethical principles.
  • It outlines corresponding challenges and implications for clinical practice.
  • The framework addresses communication issues, inadequate symptom management, and inequities due to poverty.

Conclusions:

  • Integrating this ethical framework into clinical practice can prevent or mitigate ethical concerns in childhood cancer care in India.
  • The framework provides guidance for improving the ethical quality of care for children with cancer.
Abstract

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