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Published on: September 30, 2020
A Visit-Associated Logistics Framework Describing Challenges Faced by Caregivers of Older Adults
Victoria Ngo1, Steven D Shirk1,2, Elizabeth S Chamberlin1
1New England Geriatric Research Education and Clinical Center (NE GRECC), Bedford VA Healthcare System, Bedford, Massachusetts, USA.
Abstract:
Unpaid family caregivers are assuming increasing levels of care as the healthcare system prioritizes aging in place over institutionalized care. Among their many responsibilities, coordinating in-person clinical visits is a critically important yet understudied area. This logistical aspect of caregiving for older adults is complex as it is influenced by many different medical-psycho-social factors. Presently, there is no existing framework to systematically characterize informal caregiver coordination of in-person medical visit logistics. This represents a key gap in the field and limits our understanding of the caregiving burden more broadly, especially as coordinating medical visits can represent a snapshot of caregiving challenges. To address this gap, we developed a conceptual framework integrating concepts from caregiver stress and burden research, geriatrics, and visit logistics that conceptualizes how visit-related challenges may affect caregiving and attendance of medical appointments. The Visit-Associated Logistics (VAL) framework includes domains of scheduling, preparing for the visit, visit-related time and travel, caregiver independence, routine disruption, and caregiver feelings and impressions. Recognition of what role these domains play-in terms of caregiver burden, visit attendance, and broader health outcomes-will be important in the current healthcare landscape.
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