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Identifying, Engaging, and Supporting Care Partners in Clinical Settings: Protocol for a Patient Portal-Based
Catherine M DesRoches1, Deborah Wachenheim2, Jessica Ameling3
1OpenNotes, Department of Medicine, Harvard Medical School, Boston, MA, United States.
A new patient portal intervention successfully identified and engaged unpaid family care partners in clinical settings. This scalable method supports caregivers, improving healthcare delivery for patients needing assistance.
Area of Science:
- Health Informatics
- Patient Engagement
- Caregiver Support
Background:
- Millions of unpaid family caregivers provide essential support for adult healthcare needs in the U.S.
- Caregivers manage daily tasks, medications, appointments, and follow-up care.
- The complexity of caregiving necessitates effective identification and support systems within clinical settings.
Purpose of the Study:
- To implement and evaluate a novel patient portal-based intervention for identifying, engaging, and supporting care partners.
- To integrate caregiver identification into routine clinical workflows.
- To provide resources and measure the intensity of caregiving roles.
Main Methods:
- A patient portal questionnaire was integrated into the electronic check-in process.
- Patients were prompted to identify care partners and report on caregiving responsibilities.
- Caregivers received a link to the ARCHANGELS Caregiver Intensity Index and resource information.
Main Results:
- The intervention was successfully implemented across three healthcare organizations.
- Staff and clinicians found the intervention easy to implement with no workflow disruption.
- Over 62% of patients submitted completed questionnaires within six months of implementation.
Conclusions:
- The patient portal intervention shows promise as a scalable and adaptable method.
- It effectively identifies and supports care partners within clinical environments.
- This approach can enhance the integration of caregiver support into routine healthcare.
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