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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
"A word that describes it well is 'lonely'" - Experiencing preterm birth during the first COVID-19 lockdown in
Simone Teresa Böhm-González1, Sarah Detemple1, Jasmin Gruß1
1Children's and Adolescents' Hospital, University Hospital of Cologne, Faculty of Medicine, University of Cologne, Kerpener Str. 62, 50937 Cologne, Germany.
Insights
First lockdown pandemic regulations isolated parents of preterm infants, causing loneliness and fear. Future pandemic planning must prioritize family-centered care to mitigate negative impacts on birth and perinatal experiences.
Area of Science:
- Perinatal Medicine
- Public Health
- Qualitative Research
Background:
- First pandemic lockdown imposed hospital restrictions, significantly impacting parents of preterm infants due to prolonged hospital stays.
- These restrictive measures created unique challenges for families navigating birth and early parenthood during a global health crisis.
Purpose of the Study:
- To investigate the effects of first lockdown pandemic regulations on the birth and perinatal experiences of parents with preterm infants.
- To understand the lived experiences of parents during a period of unprecedented healthcare restrictions.
Main Methods:
- Qualitative study involving interviews with ten parents of preterm infants (28-32 gestational weeks) born during the first lockdown in Germany.
- Analysis of interview data using reflexive thematic analysis to identify key themes and experiences.
Main Results:
- Parents experienced "Loneliness" and lack of support, "Losing out on meaningful moments" of birth and early parenthood, and "Fear" of infection.
- The study identified challenges in "Medical care of preterm infants" but also noted effective care despite restrictions.
- Mothers demonstrated agency by "Taking action to change hospital regulations".
Conclusions:
- Future pandemic response planning requires integrating scientific and pediatric expertise to prevent negative consequences of mitigation measures.
- Prioritizing family-centered and integrated care models is essential during public health crises to support parents and preterm infants.
Background:
During the first pandemic lockdown restrictive regulations were implemented in hospitals. Parents of preterm babies were particularly affected due to a long hospital stay. The aim of this study is to investigate how pandemic regulations during the first lockdown impacted the birth and perinatal experiences of parents of preterm babies.
Methods:
For this qualitative study, we interviewed ten parents who had a preterm baby (28 to 32 gestational weeks) during the first lockdown in Germany. The interviews were analysed using reflexive thematic analysis.
Results:
Five themes were identified 1) "Loneliness of pregnant mothers at risk at the maternity ward", highlights the lack of physical and emotional support, intensified by a tense atmosphere at the hospitals 2) "Losing out on meaningful moments" describes the feeling of being cheated of a 'real' birth experience and missing out on the 'normal life at home' with a newborn 3) "Fear as a constant companion" refers to the fear of a COVID-19 infection during the hospital stay and ambivalent feelings upon arriving home 4) "Medical care of preterm infants during the pandemic" emphasizes the gaps in medical care of preterm infants but also underscores what went well despite pandemic restrictions and 5) "Mothers taking action to change hospital regulations" portrays their agency.
Conclusion:
It is crucial to include scientific, pediatric expertise in future pandemic response planning to rapidly visualize and prevent negative consequences of mitigations measures, such as those described in this study. Protecting elements of family-centered and integrated care should be a priority.
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