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The Care Needs, Preferences, and Coping Strategies of Young Stroke Survivors: A Qualitative Study
Wen-Yu Kuo1, Kuan-Ling Chen2, Su-Mei Tseng3
1Wen-Yu Kuo, PhD, RN, Associate Professor, School of Nursing, Chang Gung University of Science and Technology, Taoyuan, Taiwan, ROC; Geriatric and Long-term Care Research Center, Chang Gung University of Science and Technology, Taoyuan, Taiwan, ROC; and Department of Physical Therapy, Chang Gung Memorial Hospital, Taoyuan, Taiwan, ROC.
Background:
Stroke incidence is rising among younger populations, who often face long-term disabilities. Understanding their care needs, preferences, and coping strategies is essential for recovery.
Objective:
The objective of this study -was to explore young stroke survivors' care needs, preferences, and coping strategies within 6 months poststroke.
Methods:
A qualitative study involving 25 participants at a Taiwanese medical hospital was conducted, where data were gathered through in-depth, semistructured in-person or telephone interviews from August 2022 to January 2023. Inductive content analysis was performed.
Results:
The participants had an average age of 53 years and were primarily married men. Three categories emerged: medical-related, social and economic, and self-reconstruction needs. (1) Medical-related needs included personalized rehabilitation and clear communication about prognosis. When unmet, survivors engaged in self-directed rehabilitation or sought peer advice. (2) Social and economic needs included family or peer support and financial assistance. Survivors preferred family presence during recovery and an early return to work to ease financial burdens. When needs were unmet, they relied on peer support, reducing expenses, or returning to work early despite physical limitations. (3) Self-reconstruction needs involved regaining prestroke abilities and adapting to life changes. Survivors preferred rehabilitation for independence and made lifestyle and work adjustments; they coped by accepting the possibility of partial recovery.
Conclusions:
We highlighted the medical, socioeconomic, and self-reconstruction needs of young stroke survivors. Tailored rehabilitation, clear communication with clinicians, and support from family and peers are crucial. However, financial pressures often compel early reintegration into the workforce. Personalized recovery strategies addressing physical, emotional, and financial challenges are vital for improving poststroke recovery.
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