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Negotiating uncertainties: care-seeking in an algorithmic society
Rui Liu1, Susanne Lundin2, Emma Eleonorasdotter3
1Department of Arts and Cultural Sciences, Joint Faculties of Humanities and Theology, Lund University, Lund, Sweden rui.liu@kultur.lu.se.
Medical Humanities
|March 13, 2025
Summary
People navigate health uncertainties in an algorithmic society, where digital health tools influence self-care. Trust in online medical information and algorithm-based systems remains complex, impacting access to care.
Area of Science:
- Sociology of Health and Illness
- Digital Health
- Medical Humanities
Background:
- The increasing digitalization of health systems introduces new layers of uncertainty in care-seeking.
- Sweden's high digital consumption of health products provides a unique context for studying these phenomena.
Purpose of the Study:
- To examine the emergence and intersection of health-related uncertainties within an algorithmic society.
- To understand how self-care practices co-evolve with digitalised health systems.
- To explore the concept of 'algorithmised medicine' and its impact on individuals.
Main Methods:
- Utilized open-ended questionnaires.
- Conducted semistructured interviews with Swedish residents.
Main Results:
- Individuals are aware of algorithm-embedded digital infrastructure and its influence on information access.
- People exhibit a fluctuating trust-distrust dynamic regarding digital health information and systems.
- Lived bodily experiences often conflict with professional medical advice and online health information.
Conclusions:
- Access to medicines remains an uncertain practice, influenced by the interplay of medicine, algorithms, and personal health experiences.
- The digital health arena is a dynamic and interconnected space, inseparable from individuals' lived realities.
- Formal health systems face challenges in mitigating uncertainties inherent in algorithmised medicine.
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