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Using Human-Centred Design to Codesign Patient Engagement Tools With a Patient Advisory Council: Successes and

Madelyn Knaub1,2, Santiago Leon3, Surakshya Pokharel1,2

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Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
|March 15, 2025
PubMed
Summary

Human-Centered Design (HCD) effectively co-builds patient engagement tools with Patient Research Partners (PRPs). This approach enhances healthcare tool applicability, though consensus-building requires clear timelines and transparent methods for future research.

Keywords:
codesignhuman centred designpatient advisory councilpatient engagement

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Area of Science:

  • Healthcare Innovation
  • Patient Engagement Strategies
  • Human-Centered Design (HCD) in Health Research

Background:

  • Co-building is a key component of patient-oriented research, aiming to improve healthcare tools through collaboration.
  • Human-Centered Design (HCD) offers a structured methodology for developing user-focused healthcare solutions.

Purpose of the Study:

  • To outline the process of co-building patient engagement tools using HCD with Patient Research Partners (PRPs).
  • To identify and analyze the successes and challenges encountered during the HCD co-building process.

Main Methods:

  • A Human-Centered Design (HCD) working group, including nine PRPs and specialists, was formed from a Patient Advisory Council (PAC).
  • The Double Diamond 4D design methodology (Discover, Define, Design, Deliver) was employed, integrating patient engagement principles.
  • A semi-structured debrief session was conducted to gather feedback on the HCD process.

Main Results:

  • Three patient engagement tools (infographic, video, website) were co-developed over 12 months to educate hospitalized patients about bloodwork.
  • Working group members valued the inclusive environment, HCD enrichment, and patient engagement support.
  • Challenges included timeline delays due to consensus-building difficulties and topic redundancy.

Conclusions:

  • Human-Centered Design (HCD) principles can be successfully integrated with patient engagement to co-build healthcare tools with PRPs.
  • Future research should focus on evidence generation for HCD co-building strategies, emphasizing clear project mapping, timelines, and transparent consensus-building.