New Directions from the COMPASS Study: Participation and Communication in Rural Health Research
Medrxiv : the Preprint Server for Health Sciences
|March 17, 2025
Summary
Community members in rural New Mexico positively engaged in chronic kidney disease (CKD) research. While kidney health visualization tools were appreciated, clear communication is vital for patient understanding and improved care.
Area of Science:
- Epidemiology
- Public Health
- Biomarker Discovery
Background:
- The Community Based Study of the Epidemiology of Chronic Kidney Disease (COMPASS) aimed to screen for CKD and identify biomarkers in rural New Mexico.
- The study explored participant perspectives on CKD research and optimal methods for communicating laboratory results.
Purpose of the Study:
- To qualitatively explore community member experiences with CKD research participation.
- To gather feedback on the clarity and utility of kidney lab results presented using National Kidney Foundation (NKF) visualization tools.
Main Methods:
- A cross-sectional, descriptive qualitative study involving interviews with 33 adult participants in Cuba, NM.
- Interviews focused on research participation and feedback on a kidney lab results letter, analyzed using NVivo software.
Main Results:
- Participants expressed positivity towards kidney health research and appreciated the NKF visualization tools.
- Most participants required assistance interpreting lab results and offered suggestions for improvement, with many adopting healthier lifestyles.
Conclusions:
- Rural community members readily participated in kidney health research, indicating a receptive population.
- While NKF visualization tools were well-received and promoted lifestyle changes, results communication requires plain language for enhanced patient comprehension and care.
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