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Many animals exhibit parental care behavior, including feeding, grooming, and protecting young offspring. Parental care is universal in mammals and birds, which often have young that are born relatively helpless. Several species of insects and fish, as well as some amphibians, also care for their young.
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Parenting Support Intervention During Pregnancy With a Life-Limiting Fetal Condition: A Pilot Study.

Denise Côté-Arsenault1, Samah Hawsawi2, Erin Denney-Koelsch3

  • 1Saint Louis University (D.C.A.), St. Louis, Missouri, USA.

Journal of Pain and Symptom Management
|March 19, 2025
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Summary

A new telehealth intervention, the Developmental Perinatal Parenting Intervention with Life-limiting Fetal Conditions (DPPI-LLFC), proved feasible and acceptable for parents facing a life-limiting fetal condition. This approach offers a promising way to support parents during challenging pregnancies.

Keywords:
Acceptability pilot studyFeasibilityLife-limiting fetal conditionPerinatal palliative careTelehealth intervention

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Area of Science:

  • Perinatal mental health
  • Palliative care interventions
  • Family-centered care

Background:

  • Current standard care for parents with life-limiting fetal conditions (LLFC) in the US emphasizes medical decision-making and accessible perinatal palliative care (PPC), but lacks interventions for daily lived experiences.
  • A novel, relationship-centered intervention, the Developmental Perinatal Parenting Intervention with Life-limiting Fetal Conditions (DPPI-LLFC), was developed based on established theoretical frameworks.

Purpose of the Study:

  • To assess the feasibility and acceptability of the DPPI-LLFC intervention for parents, interventionists, and the research team.
  • To evaluate parents' experiences with the intervention's components and their completion of study measures.

Main Methods:

  • A single-arm pilot study utilized telehealth delivery for the DPPI-LLFC.
  • Three nurse interventionists (RN-Is) were trained in the intervention's theoretical underpinnings.
  • Participants included mothers continuing LLFC pregnancies and their co-parents, receiving monthly intervention sessions throughout pregnancy and two post-birth.

Main Results:

  • High retention (92%) was observed among 13 participating parents (8 mothers, 5 fathers).
  • Telehealth delivery was feasible and acceptable, with 100% inter-rater agreement on fidelity assessments, confirming all intervention components were delivered as designed.
  • Participants reported decreased pregnancy anxiety, low-to-moderate decision regret and grief intensity by study's end, and found the intervention "meaningful and appreciated."

Conclusions:

  • The telehealth-delivered DPPI-LLFC is a feasible, acceptable, and valued intervention for parents experiencing LLFC pregnancies.
  • This novel approach shows significant potential for improving access to and delivery of perinatal palliative care.