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Pancreatic Cancer Patients Supportive Care Needs: A Qualitative Analysis.
Sara E Fleszar-Pavlovic1, Roberto M Benzo2,3, Rui Gong1,4
1Sylvester Comprehensive Cancer Center, University of Miami, Miami, Florida, USA.
Diverse pancreatic cancer survivors report unmet needs in information, psychosocial support, and physical care. Addressing these gaps is crucial for improving quality of life in this patient population.
Area of Science:
- Oncology
- Patient Support
- Qualitative Research
Background:
- Pancreatic cancer (PaCa) has a low 5-year survival rate (13%) and often presents as unresectable disease.
- Patients endure aggressive treatments with significant side effects and have substantial unmet supportive care needs.
- Limited research has explored the specific needs of racially and ethnically diverse PaCa populations.
Purpose of the Study:
- To identify the supportive care needs of a racially and ethnically diverse sample of pancreatic cancer survivors.
- To inform the development of interventions addressing these identified needs.
Main Methods:
- Semi-structured qualitative interviews were conducted with 18 pancreatic cancer survivors.
- Data were analyzed using Rapid Qualitative Analysis.
- Participant demographics and medical characteristics were analyzed using descriptive statistics.
Main Results:
- Four key themes emerged: information/health system needs, psychosocial needs, physical/functional needs, and positivity/gratitude.
- Survivors reported difficulties understanding medical information, managing post-treatment symptoms, and experiencing persistent side effects.
- Psychosocial needs included maintaining quality of life and relationships, while physical needs involved managing side effects and lifestyle changes.
Conclusions:
- Unmet supportive care needs are prevalent in a diverse group of pancreatic cancer survivors.
- Findings highlight the critical importance of developing targeted interventions to address these needs.
- Improving supportive care can enhance the overall quality of life for diverse pancreatic cancer patients.
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