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Psychosocial Burden in Parents Having Intellectually Disabled Children: A Hospital-based Study
Reena Kumari1, Tapas Kumar Ray1, Ananya Ray Laskar1
1Department of Community Medicine, Lady Hardinge Medical College, New Delhi, India.
Insights
Mothers of children with intellectual disability experience high psychological stress. Factors like income, socioeconomic status, occupation, and disability duration significantly impact parental stress levels.
Area of Science:
- Public Health
- Psychology
- Pediatrics
Background:
- Intellectual disability is a global public health concern impacting communication, academic, and social skills.
- Parental psychological stress is a critical factor in managing children with intellectual disabilities.
- Assessing parental stress is vital for developing supportive interventions.
Purpose of the Study:
- To evaluate the psychological stress levels in parents of children with intellectual disabilities.
- To identify factors contributing to parental stress in this population.
Main Methods:
- Study conducted at a Physical Medicine and Rehabilitation outpatient department.
- Parental Stress Scale (PSS) used to measure stress in 170 mothers.
- Analysis of 14 potential contributing variables to maternal stress.
Main Results:
- Four variables showed a linear association with stress: income, socioeconomic status, occupation, and disability duration.
- The mean Parental Stress Scale (PSS) score was 47.14 ± 2.93.
- A PSS score above 45 indicated high stress, with most mothers falling into this category.
Conclusions:
- Mothers of children with intellectual disabilities experience significant psychological stress.
- Raising a child with special needs presents considerable challenges for mothers.
- Clinical services and resources are needed to support parents in managing their child's disability.
Background:
Intellectual disability is a non-communicable health disorder that has become a public health concern worldwide, with a marked impairment in communication, academic, and social skills. It is important to identify the level of psychological stress among parents of these children. Hence, this study was designed to assess the level of psychological stress among parents having intellectually disabled children.
Materials And Methods:
The study was conducted in the Physical Medicine and Rehabilitation outpatient department (OPD) at Kalawati Saran Children's Hospital, New Delhi. Data were collected to analyze the psychological stress in families. Parental Stress Scale (PSS) was used as the tool to measure stress in parents.
Results:
A total of 170 mothers were enrolled in the study. In total, 14 different variables were considered plausible contributing factors to the mother's stress. Four variables demonstrated a clear linear association between variable values and PSS. These variables were a) per-capita monthly family income, b) socioeconomic status, c) study subjects' occupation, and d) duration of disability. The overall mean PSS for the entire cohort was found to be 47.14 ± 2.93. The reference criteria for low stress was 19-45, and it was 45-90 for high stress.
Conclusion:
The study suggests that mothers of children with intellectual disability experience high stress. Raising a child with special care needs is overwhelming for mothers. Appropriate clinical services should be provided to support parents of children with disabilities and offer resources to educate and enable mothers to manage their children's disabilities and needs.
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