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Understanding the lived experiences of individuals with functional neurological disorders (FND) in Australia
1School of Medical and Health Sciences, Edith Cowan University, Joondalup, WA, Australia.
Purpose:
This study aims to explore the lived experiences of individuals with Functional Neurological Disorder (FND) in Australia, focusing on the challenges they face in daily life, healthcare interactions, and service access.
Materials And Methods:
A qualitative approach was employed, involving semi-structured interviews with 11 participants diagnosed with FND. Data were analysed thematically to identify key issues impacting their experiences.
Results:
Five key themes emerged: (1) disruptions in daily life due to symptoms, (2) a prolonged and frustrating diagnostic journey, (3) difficulties accessing healthcare services in regional areas, (4) societal misconceptions and stigma surrounding FND, and (5) financial strain linked to employment instability and limited work capacity.
Conclusions:
The findings highlight the urgent need for better healthcare training, policy reforms, and tailored support services for individuals with FND. Addressing stigma and enhancing access to appropriate care are crucial steps to improve quality of life and ensure compassionate, effective treatment for those living with FND.
