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Published on: January 12, 2018
Pregnancy Experiences of Women With Intellectual and Developmental Disabilities
Lauren D Smith1, Aishwarya Khanna1, Susan L Parish1
1Lauren D. Smith and Aishwarya Khanna, Brandeis University, Susan L. Parish, Mercy College, and Monika Mitra, Brandeis University.
Women with intellectual and developmental disabilities (IDD) face increased risks during pregnancy. Improving care requires better clinician training and accessible programs to support maternal and infant health outcomes.
Area of Science:
- Maternal Health
- Disability Studies
- Public Health
Background:
- Women with intellectual and developmental disabilities (IDD) are increasingly living in the community and giving birth.
- They face higher risks for adverse maternal and infant outcomes.
- Understanding their pregnancy care experiences is crucial for improving health equity.
Purpose of the Study:
- To explore the pregnancy care experiences of women with IDD in the United States.
- To identify factors impacting their perinatal health.
- To center the voices of women with IDD in research.
Main Methods:
- Qualitative study utilizing semi-structured interviews.
- 16 mothers with IDD from the United States participated.
- Content analysis was used to analyze interview data.
Main Results:
- Perinatal care, social, economic, psychosocial, and environmental factors significantly impacted pregnancy experiences.
- Experiences varied, with some participants reporting exceptional care.
- Key themes highlight the need for tailored support systems.
Conclusions:
- Findings underscore the need for improved pregnancy care for women with IDD.
- Enhanced clinician training is essential to address specific needs.
- Development of accessible programs and services is critical for better maternal and infant outcomes.
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