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Community Collaboration in Public Health Genetic Literacy: Methods for Co-Designing Educational Resources for

Juhi Salunke1, Grace Byfield1, Sabrina N Powell1

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Summary

This study co-created public health genetics educational materials with diverse communities to improve genetic literacy and research participation. The approach fosters trust and cultural relevance, addressing historical inequities in research.

Keywords:
Community engagementDissemination and implementation scienceGenetic and genomic educationGenetic literacyGenetic researchGenetic screeningHealth equityInformed decision-makingPublic healthUser centered design

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Area of Science:

  • Genetics and Genomics
  • Public Health
  • Dissemination and Implementation Science

Background:

  • Genetic research faces unequal representation due to historical inequities, mistrust, and limited access.
  • Building trust through community dialogue is crucial for increasing participation in genetic research.
  • Co-creating educational materials with diverse communities can address these disparities.

Purpose of the Study:

  • To describe a co-creation approach for developing public health educational materials on genetics and genomics.
  • To enhance genetic literacy among the lay population for informed decision-making.
  • To foster community dialogue and address inequities in research participation.

Main Methods:

  • Iterative co-creation of educational modules involving genetics clinicians, researchers, and community members.
  • Utilized the Designing for Dissemination and Sustainability framework and its Fit to Context process.
  • Ensured consideration of public health context and diverse audiences throughout development.

Main Results:

  • Developed evidence-based educational materials and dissemination plans through community-researcher collaboration.
  • The co-creation process aimed to improve cultural appropriateness and relevance of public health genetics campaigns.
  • The approach provides a template for other groups to bolster equity and sustainability in health interventions.

Conclusions:

  • Co-creating public health genetics materials with community members enhances cultural relevance and addresses research inequities.
  • This approach can serve as a model for developing sustainable, community-engaged health interventions.
  • Further research is needed to evaluate the impact on participant receptiveness and engagement.