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How to Evaluate a Regional Telemedical Care Network Focusing on Critically Ill Children? Results from the
Josephine Mathiebe1, Gabriele Müller1, Jochen Schmitt1
1Center for Evidence-Based Healthcare, Faculty of Medicine and University Hospital Carl Gustav Carus, TUD Dresden University of Technology, Fetscherstraße 74, 01307 Dresden, Germany.
Insights
Developing an evaluation design for telemedical networks in pediatric intensive care requires stakeholder collaboration. This approach ensures commitment and provides a template for future telemedical intervention evaluations.
Area of Science:
- Pediatric Critical Care Medicine
- Health Services Research
- Telemedicine
Background:
- Critically ill children require specialized pediatric emergency and intensive care expertise.
- Telemedical networks connect specialized centers with regional hospitals for pediatric critical care.
- Evaluating these networks is challenging due to patient heterogeneity.
Purpose of the Study:
- To report the development process of an evaluation design for a telemedical network in pediatric intensive care.
- To present a stakeholder-consented evaluation design for a telemedical care network.
- To offer a methodological approach for evaluating telemedical interventions.
Main Methods:
- Literature review
- Two stakeholder workshops
- Survey of 17 partner clinics, 4 external experts, and 2 patient representatives
Main Results:
- Developed an evaluation design including care objectives, outcomes, and databases.
- Proposed a project database, clinic database, and survey database for data collection.
- The design was developed with equal participation from all relevant stakeholders.
Conclusions:
- The study provides a novel, consented evaluation design for pediatric tele-intensive care networks.
- Stakeholder involvement from the outset is crucial for commitment to telemedical intervention evaluation.
- This methodological approach serves as a template for future evaluations of telemedical interventions.
Abstract:
Background: The medical care of critically ill children requires special expertise in pediatric emergency and intensive care medicine. In Germany, this expertise is mainly available in specialized centers at maximum-care hospitals due to the small number of cases of critically ill children. Telemedical care networks, such as the Pediatric-Tele-Intensive-Care Network Saxony, offer a solution for networking these centers with regional hospitals providing basic or standard care. However, the evaluation of these networks represents a major challenge, especially because it involves a heterogeneous target group of patients with various diseases. This article reports on the evaluation design development process for such a network, under equal participation of all relevant stakeholders, and presents the resulting evaluation design. Methods: The methods used were a literature review, two workshops, and a survey of all relevant stakeholders (representatives of 17 partner clinics, 4 external experts in pediatric intensive care, and 2 patient representatives). Results: The evaluation design contained proposals for a care objective, outcomes, and the corresponding databases (project database, clinic database, and survey database) to investigate these. Conclusions: Our study can offer other researchers and stakeholders a methodological approach and template for their evaluation design. It is the first published, consented evaluation design for a telemedical care network in pediatric intensive care. When developing and realizing an evaluation design for (tele)medical interventions, including the perspectives of relevant stakeholders, from the outset, it is essential to achieve a high level of commitment to the implementation of the evaluation.
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