The European Reference Network on Genetic Tumour Risk Syndromes (ERN GENTURIS): benefits for patients, families, and
Manon Engels1, Katarzyna Urbanczyk2, Jurriaan Hölzenspies2
1Department of Human Genetics, Radboud university medical center, Nijmegen, The Netherlands. manon.engels@radboudumc.nl.
Abstract:
The European Reference Network on Genetic Tumour Risk Syndromes (ERN GENTURIS) established in 2017 and connecting more than 50 European expert centres improves access to diagnosis, treatment, and the provision of high-quality healthcare for patients with rare genetic tumour risk syndromes (hereditary cancer), no matter where they live in Europe.
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